• ​Welcome to the Wessex Children's and Young Adults' Palliative Care Network

    We are a group of professionals spanning health, education and social care who care for children and young adults with palliative care needs.  In 2020 we started as a small steering group across hospital, hospice, schools, commissioning and community services to consider how we might meet the significant gaps in provision of palliative and end of life care across Wessex.  We have now expanded to form a community of professionals from statutory, independent and voluntary sectors with the aim of ensuring every CYA with a life limiting condition is cared for by a competent, confident and compassionate team.  Launching as a Wessex wide network in Summer 2023 we plan to deliver a rolling program of education and training, provide forums for discussion and support as well as establish an annual conference.  We want to encourage collaboration across the primary-secondary-tertiary healthcare footprint in Wessex to improve patient pathways, produce guidance, and breakdown barriers between organisations.  We provide an opportunity for professionals in Wessex to support the work towards achieving holistic 24/7 care for our population who deserve the very best but are often forgotten by ‘the system’.  Let me explain with Jayden’s story….

    Patient Stories

  • June 2024

    6th June 2024 - Network Forum Meeting

    All Welcome
    ​Time - 1pm - 2:30pm
    ​​
    This will be focusing on pain in children with severe neurological impairment. Following on from our case study of Elisa, Dr Warlow will be discussing pain in children with severe neurological impairment, how to assess it, manage it and important considerations working with children and families to improve quality of life. Join us following this teams link below
    On Teams
    ​
    ​​Click here to join the meeting
    Meeting ID:  338 699 599 995
    Passcode: RQRNcc

    6th June 2024 - South West Children’s Palliative Care Strategic Clinical Network learning and sharing meeting​

    Date: 6 June 2024 from 9.30a.m. to 4.30p.m.
    Location: Westbank Healthy Living Centre, Farm House Rise, Exminster EX6 8AT
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    Symptom management masterclass on management of fluid and nutrition at end of life and supporting staff resilience with post event debrief training. 
    July 2024

    10th July - Network Management, Training and Education Meeting

    All Welcome
    ​Time - 4pm - 5pm
    ​​
    We are holding     regular meetings at 3 monthly intervals to progress the focus areas of the network, together with training and education.
    Even if you were unable to make the meeting on the 10th January, we would welcome your support and collaboration on future work streams and development of training and education and have therefore included you in these future meeting invitations.
    ​
    You can find the current Terms of Reference for the Network here. 
    On Teams

    ​​Click here to join the meeting
    Meeting ID:      386 080 086 979 
    Passcode: oz7759     

    17th July 2024 - Journal Club

    All Welcome
    ​​Time - 1:15pm - 2:15pm
    ​​
    Join us on a Wednesday lunchtime in June to consider a recently published article addressing a topic of interest within palliative care. This session is kindly hosted by the Wessex Oncology Education Network and can be joined using the link below. More information on the article and topic can be found on our education page nearer the time, here
    Click here to join the Teams Meeting
    This month's journal is Paediatric advance care planning in life-limiting conditions: scoping review of parent experiences by Barrett, Duke, Robinson et al. 

    ​To download, click here. 
    August 2024

    SUMMER BREAK

    September 2024

    13th September 2024 - Paediatric Palliative Care Foundation Study Day

    ​​Time - 9:00am - 5:00pm
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    Cost - £25 per person

    This is a generic paediatric palliative foundation care study day that is aimed at the whole MDT. It is a foundation level day. 
    Topics that will be covered:
    • breaking bad news
    • Advanced Care Plans
    • Symptom Management Plan
    • Use of syringe drivers
    • non pharmacological pain management
    • care of a child after death
    • use of mortuary
    • bereavement support
    Venue: University Hospital Southampton
    Feedback from last year
    Agenda

    25th September 2024 - Advanced Care Planning Study Day

    ​​Time - 9:30am - 4:30pm
    ​
    Cost - £30 per person

    This training day will be an opportunity to explore the new version 5 of the Children and Young People’s Advance Care Plan and learn how to plan for the future where that future is uncertain and the ‘right’ answers or path aren’t clear. Learn how to respond to difficult questions and how to use the advance care planning process to support your patients, teams, and help achieve care that is best for the child or young adult, in the right place, at the right time, by the right team. 
    ​
    Venue: Naomi House and Jacksplace, 
    Stockbridge Road
    Sutton Scotney
    Winchester, SO21 3JE
    October 2024

    6th June 2024 - South West Children’s Palliative Care Strategic Clinical Network learning and sharing meeting​

    Date: 3 October 2024 from 9.30a.m. to 4.30p.m.
    Location: Westbank Healthy Living Centre, Farm House Rise, Exminster EX6 8AT
    ​​
    Children’s advanced care planning master class 

    23rd October 2024 - Journal Club

    All Welcome
    ​​Time - 1:15pm - 2:15pm
    ​​
    On Wednesday 23rd October 2024, we are holding our quarterly journal club being hosted by Wessex-Oxford Paediatric Oncology ODN. 
    Click here to join the Teams Meeting